Diagnostic Experiences with PCOS
We recently collected pilot data in a sample of women diagnosed with Polycystic Ovarian Syndrome (PCOS) regarding their experiences with the diagnostic process.
Our long-term research goal is to assess 1) the negative impact of feminine body-type stereotypes on diagnostic decisions by medical professionals, and 2) the consequences of these biases on the time it takes women to receive a diagnosis and the resulting physical and psychological health outcomes of bias-related delays. This pilot data is part of a long-term research agenda to better understand the reason behind lengthy diagnosis experiences, misdiagnoses/errors, disclosure/social support, patient-practitioner communications, and stigma.
We have collected so many meaningful stories of women’s diagnostic experiences over the past two years! We thank you for participating in this study and for sharing your story with us!